Please download a survey HERE that we have put together but before you feel that you do too many, it is really important that we understand what the charity means to you; what if anything we need to do better or just more of.
We would like to reach everyone who needs us, wherever they live, but we know that we are a long way from that goal at the moment. Only by understanding how effective we currently are can we access the necessary funding to achieve this.
I do hope you are able to help, please email this back to us at email@example.com. If it would be more convenient to phone your responses through, the Helpline volunteers will take the answers you are prepared to give and they will pass them on. Please could you get it back to us by 19th January 2014.
Your responses can of course be anonymous (although your approximate location is important) but if you are able to share your contact details so that we can look for a more detailed response early in 2014, that would really be appreciated.
Please keep Tuesday 15th April free in your diary. The 2014 AGM will again be held in the Queen's Hotel in central Dundee from 11.00 to 15.00 - lunch included (donations appreciated). We now have our speakers confirmed and they are:
Dr Lisa Hutton: Consultant physician/rheumatologist at Inverclyde Royal Hospital. Her interest in rheumatology and osteoporosis began in Aberdeen where she worked at the Osteoporosis Research Unit with Professor David Reid and Professor Stuart Ralston and was one of the authors of the first SIGN guideline on Osteoporosis. She completed her rheumatology training in Glasgow before taking up her consultant post at Inverclyde. Since this time she has overseen the establishment of DXA facilities at both major hospitals in Clyde.
Eric Clark: Internationally acclaimed investigative journalist and author who has experienced the trauma of a PMR & GCA diagnosis and is currently working on a book with Professor Bhaskar Dasgupta provisionally entitled ‘PMR and GCA At Your Fingertips’. Some of our members have contributed to this landmark book.
Two applications for GCA research have been funded by Fight for Sight!! Click here for Fight for Sight's website
Professor Dasgupta's proposal: 'To ascertain the incidence and factors that contribute to sight loss in GCA....'
This is to be funded jointly by Fight for Sight and funds raised by PMRGCAuk
In addition Dr. Eoin O'Sullivan's (Kings College Hospital. Conslt. Ophthalmologist) proposal:
'...a pilot study to investigate the underlying causes....of visual loss in GCA' is to be funded entirely by Fight for Sight
I would like to thank those who sponsored us in the Glasgow Carrot Walk. Lorna and I were very fortunate to stay dry and the evening was mild. We walked the shorter distance which, including walking to the start point, was around 7 miles. Between us we raised around £500. I decided not to write to individual sponsors to try and save on postage and hope you understand. Jean’s son-in-law walked the longer distance and was first back to base (yes, we were impressed).
To download an interesting article looking at fast track experience for Giant Cell Arteritis please click HERE
DUNDEE MEETINGS: ALL WELCOME!
The latest newsletter (No 9: Summer 2013) is now available on the Newsletters page.
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