You have probably arrived at this website because you or someone close to you wishes to know more about Polymyalgia Rhuematica or Giant Cell Arteritis. If you are living with either or both conditions, we do understand the effect it may have. Please note that we are not an alternative to medical professional advice but may help you better manage day-to-day situations.
We focus on Scotland but are happy to talk to anyone who needs us, however would draw your attention to charities in England (PMRGCAuk and PMRGCAuk North East Support) and elsewhere in the world. They will have a better understanding of health care in their countries or regions.
Dr Sarah Mackie Associate Clinical Professor and Honorary Consultant Rheumatologist at Leeds hospitals spoke about PMR and GCA at our AGM on Friday 24th March 2017. She is a rheumatologist in a five-year NIHR Clinician scientist Fellowship, which centres around ways of improving the diagnosis of polymyalgia rheumatica (PMR). The talk was excellent and we are looking for a speaker for next years AGM. More information will follow.
There is a great deal of world-wide research into both the conditions and their treatment going on at the moment. We will do our best to bring you the latest findings as they are published.
On the NHS Choices website under Polymyalgia Rheumatica they say 'If you have pain and stiffness that lasts longer than a week, you should see your GP so the cause can be investigated'. Our members would agree, never assume that the pain and stiffness is just you getting older - there is nothing in the rule book that says we should have pain and stiffness as the years progress.
Individual stories and coping strategies are from an individual’s perspective and we recognise that everyone is different so what works for one may not necessarily work for another. If you feel that information you have gained from this site would help, we would encourage you to discuss it with your medical professional.
If you would like to share your own story or experience, please do send it to us (email address below) and we will include it where it is appropriate (please allow for editorial judgement although we will ensure you are happy with changes before publication).
Please take the time to explore the various pages that have been collected together under broad headings. We encourage feedback because this site is for you.
DEDICATED SCOTLAND HELPLINE: 0300 777 5090
The charity provides support, via this website, a telephone helpline, support groups and a newsletter, to anyone who has been diagnosed with either Polymyalgia Rheumatica and/or Giant Cell Arteritis as well as offering information to families, friends and carers or anyone else who is interested in the conditions.
You may prefer to receive paper copies of specific information, or perhaps a generic pack in which case please access the Contact us: Information pack page for details on how to request a pack.
If you have a less specific request or if you feel able to help please use the Contact us: General Enquiry form.
We are not an alternative to medical professional advice but may help you better manage day-to-day situations.
We are a member of the Health and Social Care Alliance Scotland