Today is Friday 20th September 2019.
Twitter icon
Facebook icon
RSS icon

News


Our NEW website is www.pmrgcascotland.com. Please use the new address as information on this site may be out of date... 



IN ABERDEEN AREA and want to find out more about PMR and/or GCA.

Friday June 14th 2019 12 noon.

Come to Aberdeen Douglas Hotel, 43-45 Market Street, Aberdeen, AB11 5EL on Friday 14th June 2019 at 12 noon.

PMR/GCA Scotland are hosting an event to discover if there is enough interest in the area to set up a support group. Soup, Sandwiches, tea and coffee will be supplied with no commitment and no charge.

For catering purposes, please book a place by emailing aberdeen@pmrandgca.org.uk before Friday June 7th.

For more details ring 0300 777 5090 or email Aberdeen@pmrandgca.org.uk


AGM 2019

Very sucessful meeting in Glasgow on 12th April 2019. Speakers were Kate Gilbert PhD author of Polymyalgia and Giant Cell Arteritis: a survival guide and Mayrine Fraser, Service Delivery Lead/ Specialist Nurse from the Royal Osteoporosis Society. 

AGM 2020 

Best Western Queens Hotel Dundee 160 Nethergate, Dundee DD1 4DU Phone: 01382 322515 is booked for Friday 20th March 2020. Speaker is Dr Anna Ciechomska, Consultant Rheumatologist, NHS Lanarkshire. Keep the date in your diary.


TOCILIZUMAB latest news...

The SMC (Scottish Medical Consortium) announced on Monday 10th September 2018, their approval for the use of tocilizumab (RoActemra®) for restricted use within NHSScotland. This drug may be used in the treatment of Giant Cell Arteritis (GCA) in adult patients subject to a 12 month clinical stopping rule.

This is the first new drug for GCA since steroids were first used 70 years ago. Thousands of patients have had no option up to now but to take high doses of steroids for several years.

The relevant Detailed Advice Document can be found here and a link to the Decision Explained public information summary can be found here .

The charity's submission to the SMC can be found here.

The charity has been thanked for the considerable time and effort taken to capture the patient and carer perspective during the submission process.  We particularly thank Lorna for all her efforts and we welcome this decision.

To see the report on the trial of Tocilizumab in Giant-Cell Arteritis issued on 27th July 2017 go to  Research and clinical guidelines.


VIDEO CHANNEL

Our sister UK charity (PMRGCAuk) has a video channel. To access this go to https://vimeo.com/channels/1352513


PLEASE PLEASE KEEP RAISING AWARENESS 

Headaches may mean your sight is at risk. See the entry for Giant Cell Arteritis on the page 'What is PMR and what is GCA?' for more information and the warning symptoms.

 


UPCOMING EVENTS

We aren't aware of anything at the moment but if you know of something that would be of interest to our members or readers of this website, please email us at info.scotland@pmrandgca.org.uk.  


FUNDRAISING!!

Do you have family or friends who are prepared to share their talents and raise funds for the charity so that we can both continue and expand our work? Maybe they are part of a community choir or orchestra or band? Perhaps they would like to skydive or undertake a challenging walk and wanted a cause?

Please do ask around and see if anyone is prepared to help. We can provide some publicity material and sponsorship forms if needed.

Either call the helpline (0300 777 5090) with your contact details and we will call you back  Or email info.scotland@pmrandgca.org.uk


 


Donate Now Button
I regret that we are not currently set up for Charity Choice to collect Gift Aid on our behalf but if you are a taxpayer and are happy to apply this to your donation, click the link GIFT AID FORM which can then be posted to us at 7 Hamilton Place, PERTH PH1 1BB.
If you prefer to donate via BACS  please email info.scotland@pmrandgca.org.uk and we will provide the necessary details.