The purpose of this website is to share and learn from others' experiences and to publicise sources of information and help. By raising awareness of this much neglected group of sufferers we hope to give research some momentum and to increase the understanding of others and of other disciplines in the medical profession. Support Groups provide hope as well as support and encouragement. There are several Support Groups in the UK. Full details are on the Contacts page. (We are no longer Tayside, we are PMR-GCA Scotland.) Any information you provide to us is held strictly in accordance with the Data Protection Act 1998.
Disclaimer: please note that this website does not have any official medical authority.
Registered Scottish Charity No. SC037780